SIB Days 2020: Victoria Nembaware - The Sickle Africa Data Coordinating Centre (SADaCC)

Keynote lecture 1: Sickle cell disease (SCD) is a life-threatening blood disorder that affects millions of people worldwide, with disproportionate incidence rates and mortality rates in the Sub-Sarahan (SSA) region. The Sickle Africa Data Coordinating Center (SADaCC) was created in 2017 to provide support to develop the largest multi-national SCD patient registry in SSA, data standardization, research capacity development, support improved healthcare and coordinate communications for the SCD in SSA Collaborative Consortium (SickleInAfrica). SADaCC envisions contributing to improved quality of care, quality of life and survival of people affected by SCD in Africa and globally. This presentation will highlight SADaCC’s strategy, lessons to date and key achievements.

Victoria Nembaware is the Project Manager for the Sickle Africa Data Coordinating Center (SADaCC). SADaCC’s mandate is to coordinate research capacity development and training in Sickle Cell Disease specifically in study design, Data Management Plans, Big Data Analytics, ontology development and application.

Any questions about this talk?
Contact Victoria Nembaware: @VickyNembaware

Session Chairs: Roman Arguello (Evolutionary Genomics & Sensory Biology Group, University of Lausanne), Aleksandra Sapala (Computational Biology Group, ETHZ, D-BSSE), Robert Waterhouse (Evolutionary-Functional Genomics Group, University of Lausanne)


About the SIB Days: this internal conference of the SIB Swiss Institute of Bioinformatics is organized every two years. Its ambition? To give a voice to SIB's 80 Groups across Switzerland, through a diversity of bioinformatics topics, and to offer its 800 SIB Members an opportunity to meet and learn about each other’s research and activities in a friendly atmosphere. Due to this year’s events, the conference has taken place virtually for the first time, on 8-10 June 2020. Most of the talks could be made public post-event.


Read more about the SIB Days: https://www.sib.swiss/about-sib/news/10713-virtual-sib-days-2020-swiss-bioinformatics-highlights-recorded-sessions